Pituitary Conditions
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Patient Stories
Katy’s Story: My Pituitary Story
My name is Katy, I am 36 years old and have a daughter of 2 years old. When I first started having symptoms, my daughter was 8 months old, and put a lot of these symptoms down to my body adjusting after pregnancy. However, after a while I knew something wasn’t right. In January 2022, […]
Risa’s story: Living life to its fullest with Acromegaly
My name is Risa and I have Acromegaly. It was October of 2018, as I nervously awaited the results of my brain MRI. I remember utter disbelief washing over me as my Endocrinologist informed me that I had a large tumour on my Pituitary Gland and furthermore, it was causing a rare disease with a […]
Teagan’s Story: Prolactinoma and University
Teagan was diagnosed with Prolactinoma in October 2021, at just 19. She was alone in her university room, 250 miles away from home. Teagan is a student at the University of Exeter. She noticed her migraines getting more and more painful. She originally put it down to majority of her studies being online due to […]
Gary’s Story: My Prolactinoma Journey
I was diagnosed with macro Prolactinoma at the age of 31. Now at 65-years-old, I am an avid cyclist which has inspired my wife and myself to take on the famous Land’s End to John O’Groats route raising over £1700 for The Pituitary Foundation. Reflecting on the fact that years before my diagnosis, there were […]
Howard’s Story: Spotlight On Prolactinoma
Howard Pearce has been a member and volunteer with The Pituitary Foundation for some time, particularly as one of our telephone buddies. He has been a part of The Foundation since his diagnosis of prolactinoma at the age of 49. Now 76, Howard shares the importance of supporting others with pituitary conditions. “I think the […]
Isobel’s Story: Hamish the Helper Dog
I was diagnosed with Adrenal Insufficiency in 2014 after repeatedly ending up in A&E with what appeared to be an unusual asthma attack and by complete chance after a 2-week asthma ward admission, a consultant ran a Synacthen test and diagnosed me with Secondary Adrenal Insufficiency. Because the treatment for asthma attacks is the use […]
Nadine’s story: Living with a physical disability and Cushing’s disease
Nadine was diagnosed with Cushing’s disease in 2003, after going in for an operation to fix a broken hip. When doctors noticed how different she looked to her sister, they started doing some tests. Nadine experienced a range of Cushing’s symptoms before her diagnosis: “my face was starting to balloon. I put on weight rapidly. […]