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Living with Prolactinoma: Jessica's story

Jessica's account of living with Prolactinoma as a young adult.

Diabetes Insipidus and me - an 8 year old's story

An 8 year old's account of his experience with DI and his reasons for wanting to fundraise.

General Members' meeting 2017

Would you like to attend our 2017 General Meeting?

Position statement regarding price hikes of medicines

Position statement regarding price hikes of medicines

A patient with two rare diseases - Dan's story

Dan tells us about his experiences of living with two rare diseases.

Research is the campaign theme for Rare Disease Day 2017

The Rare Disease Day theme this year is Research so we thought we'd share with you some our research findings from a recent survey.

Lawrie's story - journey of pituitary tumour diagnosis

Lawrie's journey before and after his pituitary tumour diagnosis.

What is a Prolactinoma?

A prolactinoma is a prolactin-producing tumour of the pituitary gland. This is a benign tumour, and not a brain tumour or cancer.

Tara Palmer-Tomkinson pituitary tumour confirmed by family

Tara Palmer-Tomkinson's family confirm her cause of death was not linked to her pituitary tumour

Help us support Rare Disease Day 2017!

Read more about Rare Disease Day and help us support this campaign!