University College London (UCL) and University of Cambridge are collaborating on a study and want to hear from all people who have undergone surgery for a Pituitary Adenoma. As well as carers, family members, healthcare professionals and researchers.

UCL highlighted that:

“There has been some extensive research within pituitary surgery, however there are still questions left unanswered. Specifically, that clinical research doesn’t always represent the priorities of patients. This leads to a mismatch of the research priorities of patients, healthcare professionals and researchers.

There is also the issue that information recorded on pituitary adenoma surgery is inconsistent due to different studies measuring different outcomes. Meaning it is difficult to compare and combine the results. Furthermore, it’s hard to draw meaningful conclusions.”

However, UCL want to change that by launching the PitCOP (Pituitary Surgery Core Outcome and Priorities) study.

They want to bring together patients, caregivers, researchers and healthcare professionals for a two-part study, consisting of two rounds of online survey’s:

Part One: Priority Setting Partnership

To determine the top 10 most important research priorities within pituitary surgery.

To be completed by the end of October 2023

Part Two: Core Outcome Set

To identify and agree on a set of outcomes to be used in future pituitary surgery research.

By taking part, they are offering the opportunity to be listed as collaborators in any future published scientific literature by University College London and the University of Cambridge.

To learn more visit the PitCOP website and email [email protected] or [email protected] with any questions.