Our health information resources
We have lots of information resources to help you understand pituitary conditions and their treatment. Here you can find booklets, factsheets, template letters and more. All our resources are free to download. You can also buy printed versions of our materials through our shop.
Condition booklets
Acromegaly
A booklet about acromegaly, including causes, symptoms, diagnosis and treatment. Also includes information on living with acromegaly.
Adrenal insufficiency
An information booklet about adrenal insufficiency, including treatment and the steroid Sick Day Rules.
AVP deficiency
Our AVP deficiency booklet has information about causes, diagnosis, treatment and long-term care.
Cushing's
Information about Cushing's (both the syndrome and disease), including causes, treatment and living with the condition.
Prolactinoma
Information on prolactin and prolactinomas, including diagnosis and treatment. Also includes treatment information and long-term care.
The pituitary gland
An in-depth booklet about the pituitary gland and conditions affecting it, as well as general information for living with a pituitary condition.
Pituitary disease factfile
A booklet for GPs and other healthcare professionals, with information about different pituitary conditions and their treatment.
Wellbeing booklets
Surgery and radiotherapy
A booklet about the different treatments available for pitutiary conditions. This can help you prepare for surgery or radiotherapy.
Your pituitary journey
A booklet designed to help you manage the long-term impacts of a pituitary condition. It covers emotional impacts, fertility, fatigue and self-care.
Fatigue management
Information to help you manage fatigue and your wellbeing.
Weight issues and nutrition
Information to support you with weight management and nutrition throughout your pituitary journey.
Living with infertility
Information to support you if you are facing difficulties with infertility.
Psychological impacts
Information about the psychological impacts of the diagnosis and treatment of a pituitary condition.
Male hormones and infertility issues
Information about how pituitary conditions may impact your fertility, and the treatments available.
Information for parents and young people
Living with AVP deficiency booklet for teens
An information booklet for teens and young adults about living with AVP deficiency.
Living with hypopituitarism booklet for teens
An information booklet for teens and young adults about living with hypopituitarism.
Your pituitary child booklet (ages 5 to 11 years)
An information booklet for parents on caring for a child with a pituitary condition.
Your pituitary child booklet (ages 0 to 5 years)
An information booklet for parents who are caring for a young child with a pituitary condition.
Hydrocortisone advice for parents
An information booklet for parents to help you understand the hydrocortisone Sick Day Rules for your child with adrenal insufficiency.
Hydrocortisone care guide for schools
A care guide for you to fill out with your child's care and medication needs.
AVP deficiency care guide for schools
A care guide to give to schools and staff to tell them about your child's condition and care needs.
Template letters
Adrenal insufficiency Summary Care Record update letter
A template letter to fill out and share with your GP to make sure your adrenal insufficiency diagnosis is recorded on your Summary Care Record.
AVP deficiency Summary Care Record update letter
A template letter to fill out and share with your GP to make sure your AVP deficiency diagnosis is recorded on your Summary Care Record.
Desmopressin refusal form
If a healthcare professional refuses to give you desmopressin, you can ask them to sign this template letter as a record of their decision.
Hydrocortisone refusal letter
If a healthcare professional refuses to give you hydrocortisone, you can ask them to sign this template letter as a record of their decision.
Factsheets and information sheets
AVP deficiency factsheet for hospital staff
An information sheet for patients with AVP deficiency to give to A&E and hospital staff. This explains your condition and what care you need.
Adrenal insufficiency factsheet for hospital staff
An information sheet for patients with adrenal insufficiency to give to A&E and hospital staff. This explains your condition and what care you need.
Emergency hydrocortisone factsheet for ambulance staff
An information sheet for ambulance staff to help them understand your hydrocortisone needs in an adrenal crisis.
Patient care card
A care card for people with adrenal insufficiency and AVP deficiency, to fill out with your medication and care needs.
Fasting with adrenal insufficiency leaflet
A leaflet for people with adrenal insufficiency who may be fasting during Ramadan.
Awareness cards
AVP deficiency toilet access card
A toilet access card for people with AVP deficiency, to request access to toilets in public.
AVP deficiency awareness card
An awareness card for people with AVP deficiency, to inform others of their condition and medical needs.
Steroid emergency card (for adults)
An emergency alert card for adult patietnts with adrenal insufficiency, to alert others to your need for replacement steroids.