Welcoming our New Trustees
23/02/2021
Introducing five new additions to our board
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HRAPharma Rare Disease Campaign
01/02/2021
Join in with this simple campaign to raise awareness this #RareDiseaseDay
2021 UK Rare Diseases Framework
11/01/2021
On Saturday 9 January 2021, the UK Government published a new UK Rare Diseases Framework. This article sets out the underpinning themes and priorities for the next five years that must be acted upon if the lives of people with rare diseases are to improve.
