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Welcoming our New Trustees

Introducing five new additions to our board

Welcome to new Medical Committee members

We welcome 3 new members to the Committee

HRAPharma Rare Disease Campaign

Join in with this simple campaign to raise awareness this #RareDiseaseDay

Save the Date!

We are excited to be hosting our first ever Virtual Conference on 1-6 Mar

2021 UK Rare Diseases Framework

On Saturday 9 January 2021, the UK Government published a new UK Rare Diseases Framework. This article sets out the underpinning themes and priorities for the next five years that must be acted upon if the lives of people with rare diseases are to improve.

Coronavirus General FAQs

Answers to FAQs from our Endocrine Nurse

Coronavirus Advice

Information for pituitary patients on keeping safe 

COVID Vaccinations

Guidance for patients with a pituitary condition

Christmas Hours

Hours for our office and helplines over the festive period

Twitter Chat - Wed 25th Nov

Ask your questions to the experts