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Research Survey - Genetic Alliance

Invitation to take part in a Genetic Alliance Survey - if you are a pituitary patient deficient in hormones, and how this affects you on a day to day basis.

Listen to Logan who's climbing Snowdon in support of mum

A messaage from a 9 year old inspiration!

Rare Disease Day February 28th 2018

A very Happy Rare Disease Day to you all! Today hundreds of rare disease patient organisations from countries all over the world will hold awareness raising activities. We will be celebrating by raising awareness on social media and via our website. Our Campaigns Manager, Rosa, is also looking forward to attending Rare Disease UK parliamentary reception in Westminster at 1pm, and we are also delighted to have a feature printed in The Guardian. Read the article to find out more and see the ways you can get involved. 

Volunteer achievements this week

We’d like to share with you a few of our volunteers’ achievements within the last week.

Resolution Chemicals Hydrocortisone tablets

There is a new generic hydrocortisone tablet which is both lactose-free and maize free. Read here the description that  Resolution Chemicals have given about the new tablet.

Dan’s 2017

Dan tells us about his 2017 as Volunteer Ambassador for The Pituitary Foundation and as a patient representative at events. 

DHEA information

DHEA in the news

Key findings from The Foundation’s Patient Survey

More than 1,000 people took part in our 2016 Patient Survey and we are very grateful to each and every one of you as this survey has led to The Foundation gaining some vital statistics, some of which we will tell you about here.

Recent campaigns, policy, and awareness work

The Foundation takes part in regular policy work, and we campaign on key issues facing pituitary patients to improve care and services. Here is a quick update on a few of our most recent activities.

Christmas telephone & office opening hours

See our opening hours for our various helplines over the Christmas period, and what extra support we will be offering on Christmas Day.