Invitation to take part in a Genetic Alliance Survey - if you are a pituitary patient deficient in hormones, and how this affects you on a day to day basis.
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A messaage from a 9 year old inspiration!
A very Happy Rare Disease Day to you all! Today hundreds of rare disease patient organisations from countries all over the world will hold awareness raising activities. We will be celebrating by raising awareness on social media and via our website. Our Campaigns Manager, Rosa, is also looking forward to attending Rare Disease UK parliamentary reception in Westminster at 1pm, and we are also delighted to have a feature printed in The Guardian. Read the article to find out more and see the ways you can get involved.
We’d like to share with you a few of our volunteers’ achievements within the last week.
There is a new generic hydrocortisone tablet which is both lactose-free and maize free. Read here the description that Resolution Chemicals have given about the new tablet.
Dan tells us about his 2017 as Volunteer Ambassador for The Pituitary Foundation and as a patient representative at events.
DHEA in the news
More than 1,000 people took part in our 2016 Patient Survey and we are very grateful to each and every one of you as this survey has led to The Foundation gaining some vital statistics, some of which we will tell you about here.
The Foundation takes part in regular policy work, and we campaign on key issues facing pituitary patients to improve care and services. Here is a quick update on a few of our most recent activities.
See our opening hours for our various helplines over the Christmas period, and what extra support we will be offering on Christmas Day.