Research opportunity for people with adrenal insufficiency

Invitation to take part in a Research Study: Self-management for patients with adrenal insufficiency


Dr Sofia Llahana, Senior Lecturer and Consultant Nurse, is leading an international study involving patients with adrenal insufficiency. The aim of the study is to investigate the factors that influence the patients’ ability to self-manage their condition, with the objective to develop a Position Statement on standards of patient education and support services for patients with adrenal insufficiency and their families. The study has been endorsed by the Society for Endocrinology and the European Society for Endocrinology and is in part funded by the Addison’s Diseases Self-Help Group. In this first Phase of the study, Dr Llahana is inviting patients with adrenal insufficiency on steroid replacement and family members to take part in virtual group discussions via Zoom lasting up to an hour to share their experience of managing their condition. Participants will receive a £20 high street voucher as a token of appreciation for their help. Please follow the link below to find out more about the study and to take part. Sofia can also be contacted via


Take part: Self-management in Adrenal Insufficiency – Stage 1 qualitative study