Campaigns work archive

Save Our Loos LOGO 492

The Pituitary Foundation runs awareness campaigns. We also coordinate other ad hoc campaigns/awareness activities. We campaign about issues facing pituitary patients. 

Some useful resources from past campaigns are still available and still being used to spread awareness. For example, template letters, to raise awareness about various pituitary issues, to health professionals and councillors are still available to download if you would like to get involved.   

Alongside our set campaigns each year The Foundation speaks to public services, politicians, other charities, businesses and the general public to raise awareness and understanding of pituitary conditions.

From 2010 onwards campaigns have included: 

  • THINK - Adrenal Insufficiency - we worked with University Hospitals Bristol NHS Foundation Trust, to encourage all hospitals to have a protocol in place for managing patients with adrenal insu­fficiency. To find out more click here. 

  • Awareness Month 2016 & 2017 focussed on improving optician awareness about pituitary tumours. For further details click here
  • We have raised awareness about life threatening pituitary conditions that are caused by childbirth, National Childbirth Trust (The largest charity for parents) are now alerting their practitioners who work directly with parents to our web pages and factsheet. Read more here.
  • Know your insipidus from your mellitus: This was our summer 2016 awareness campaign highlighting the importance of desmopressin being a lifesaving medication, and how it is vital not to confuse diabetes insipidus with diabetes mellitus because they have different causes and very different treatments. Full details about the campaign are available here
  • Adrenal crisis e-learning module campaign: our spring 2016 campaign increased the use of the adrenal crisis e-learning module by ambulance staff, which was developed by North West England Ambulance Service.  Full details about the campaign are available here
  • Awareness Month 2015 saw many of you taking part in our Get Red Flagged Campaign. You can read more about the campaign here
  • Save Our Loos: Many pituitary patients with the condition Diabetes Insipidus regularly need to use the bathroom as the condition prevents their kidneys from retaining water. Not having public toilets readily available can cause considerable distress, and ultimately leads to isolation due to patients having to avoid leaving the house. The Foundation ran a campaign during 2015 where supporters wrote to their local councillor, signed petitions, and spread awareness of DI.  click here for more details.
  • We have trained 12 Volunteer Campaigners who are out in their communities raising awareness locally, they are taking posters to large numbers of clinics in their area and are writing to politicians and local councillors. They also support The Foundation’s annual campaigns.
  • Foundation staff speak out for pituitary patients in the many rare disease networks we are involved with. To give just a few examples; Clinical Reference Group in England, Welsh Cross Party Group for rare diseases, as a member of both Rare Disease UK and its patient network, and Specialised Health Care Alliance.

  • The Foundation keeps up to date by making sure we are aware of policy decisions that we should respond to on behalf of pituitary patients. We follow the activities of government's policy work, NICE, PIN, relevant cross party groups, charity sector organisations' e-bulletins, health boards, other endocrine based organisations, and commissioning bodies.

  • General Election Campaign: This involved emailing your local politician to ask them to support the open letter and keep the Strategy on the political agenda. The Rare Disease Strategy, produced in 2013, aims to ensure rare disease patients receive the best care and treatment that health and social services can provide. 

  • Adrenal crisis awareness in ambulance staff
    Activities included an Advanced Paramedic joining the Medical Committee, publicity of Addisonian crisis e-learning module, template letters sent, and attendance at the Birmingham National Ambulance & Patient Safety Conference.
  • Epipen petition
    A petition was organised urging for the development of a self-injecting device like the Epipen but for hydrocortisone. The petition was presented to the Department of Health, but the device was unfortunately never developed.