The last day of February
Rare Disease Day takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Each year we celebrate rare disease day . There will be different ways of getting involved, from sharing social media, to attending an event, or sharing your story.
Rare Disease Day was launched by EURORDIS-Rare Diseases Europe and its Council of National Alliances in 2008.
There are lots of ways you can get involved in rare disease day. You might want to share a photo to show solidarity with people living with a rare disease in your community! Share a photo with painted hands on social media using #RareDiseaseDay and tag @rarediseaseday.
Every year, thousands of events are organised around the world to mark the occasion of RareDisease Day.
Organise an event at work, with your friends or family, during or around the month of February to raise awareness. Don’t forget to share pictures and videos using #RareDiseaseDay
Share your story
Raise awareness about rare diseases and their impact on peoples’ lives by sharing your story of living with a rare disease or caring for someone that does. You can submit a written or video testimony on the Rare Disease Day website and read the stories already uploaded!
You can stay up to date with the latest news from this year’s Rare Disease Day campaign by following them on Facebook, Twitter and Instagram