We regularly share research studies to our news page, newsletters and social media channels.

Looking to participate in research?

Research is important to make new advances in the treatment and diagnosis of pituitary conditions and to improve the standard of care. You can use your experience of caring for someone or living with a pituitary condition to create change in the endocrine sector. Some opportunities may also provide a small payment or cover any expenses incurred from involvement.

You can see our current research opportunities below.

Hypothalamic hunger after a pituitary tumour or craniopharyngioma

This research study is about eating behaviours in people living with hypothalamic hunger, also known as acquired hypothalamic obesity (aHO). This is when the part of the brain that regulates appetite and energy balance — the hypothalamus — is damaged, often by a tumour such as craniopharyngioma (CP), pituitary adenoma, hypothalamic glioma or other optic pathway tumours or by the tumour’s treatment (surgery or radiotherapy).

The study involves completing a short online questionnaire (about 20–30 minutes) with an optional follow-up interview.

Using advanced imaging to detect pituitary adenomas

An opportunity is available to be involved in a PPI (Patient & Public Involvement) research group, to help shape future research into imaging techniques for pituitary disease. Currently, the NHS uses techniques like MRIs to be able to identify pituitary adenomas. This group is being created to help improve research in this area by looking into techniques such as advanced MRIs and innovative nuclear medicine.

Coping with hunger and obesity due to a craniopharyngioma

An opportunity to share your, or your loved ones, stories and experiences of living with a craniopharyngioma. We are looking for participants to share their stories and experiences as part of a study into the affects of a craniopharyngioma on hunger and obesity

Looking to publicise your research?

If you are a researcher and you want us to advertise a research study please go to our page for healthcare professionals.