As we get ready to relaunch our support group in Bristol, we hear from the new support group leader Ruth about her pituitary journey so far.

Ruth’s story

Hi my name is Ruth Harper and I was diagnosed with Idopathic Cranial Diabetes Insipidus (AVP-D) in May 2019. I didn’t know why I was thirsty all the time and needing the toilet but after talking to my GP and being referred to an endocrinologist and many tests I was diagnosed.

I had many questions and couldn’t reach out to anyone who I knew had the condition then I heard if pituitary foundation and managed to attend one Bristol meeting. Then the following year lockdown all meetings stopped no online zoom etc were available for the Bristol area and the support group slowly phased out.

I’ve been keen to start up another group to provide support not just to myself but to everyone navigating a pituitary disorder. And now finally with the help and support of pituitary foundation I am pleased to say we are starting up a new Bristol support group 

The reformed Bristol support group will be meeting for the first time in April 2026, in central Bristol. If you would like more information or to attend the meeting, please click on the button below.