The Northern Ireland Patient Support Group is for the support of all pituitary patients, relatives and carers. The group provides peer support, networking, sharing of experiences and liaising with our local pituitary unit at the Royal Victoria Hospital Belfast to optimise patient experience.

Over the last few years we have met virtually via Zoom. More recently we have commenced in person meetings and we plan to have a mix of both in the future. We tend to meet every two to three months and hopefully we will have some information sessions or medical talks at future meetings.

If you are interested in being kept in the loop or in joining any of our meetings please contact Gillian using the contact form below.

The Ireland Support Group provides much needed support and information for people diagnosed with rare conditions affecting the pituitary gland.

Support is available through phone conversations, email enquiries, answering your questions in a private Facebook groups. The group also organise online and in person meetings and an AGM welcome to all in the pituitary community including medical professionals.

The group will be very pleased to hear from you and can answer enquiries as well as offering information and support. Please get in touch with us using the contact form below.

The Kent Support Group has been relaunched by Lauren!

The group will be meeting to share experiences, offer information and welcome new members.

Everyone is welcome, including patients, family and friends.

Please fill in the form below to hear about our next meetings!

The Solent & IOW Support Group covers the areas surrounding Portsmouth, Southampton & also the Isle of Wight. We hold regular, informal get-togethers with expert speakers.

We welcome everyone who is affected by pituitary conditions including friends and family, particularly those who are newly diagnosed. We always hold a raffle (prizes gratefully received on the day, although nothing to break the bank of course!)and refreshments are available too.

From time to time we hold patient led meetings which, through discussion, bring about different ‘hints and tips’ that help people with the day to day management of their pituitary condition. Additionally, if any of you out there have a particular subject or speaker you'd like to suggest for any of our gatherings, please contact us using the form below.

What to expect at a meeting

We appreciate it can be a daunting experience meeting new people for the first time so you definitely won’t be left to just stand there like the proverbial ‘lemon’. For our Portsmouth meetings there is a sign on display showing where to find us in the Garden Room. You will be welcomed as soon as you arrive and offered tea, coffee, fruit juice and biscuits too. We also host yearly meetings on the Isle of Wight and at Southampton General Hospital. You can see all our upcoming events below.

We do ask you to sign in giving your name, address, contact number & email address if you have one. This is so that we can send you our quarterly Newsletters. One of our committee members (pictured below) can chat to you about your pituitary condition and offer you guidance as to where to find more information. We will do our best to introduce you to someone else with the same condition. We’re a very friendly bunch, so come & give us a try!

Our most recent Newsletter is now available to download: September 2026

We can sometimes offer lifts from various areas, so if you are struggling to get to a meeting location please get in touch using the form below and we will try to assist. We look forward to meeting you for a chat, a sharing of experiences, the odd whinge, and a laugh or two as well.

Location

Our Portsmouth area meetings are held at Portchester Parish Hall, Assheton Court, off Castle Street, Porchester, Fareham PO16 9PS.  Also, after discussion your committee decided to change our start time to 10.30am, which will give us all an extra half an hour in bed !

Portchester Parish Hall is near to Fareham, Portsmouth and Havant with good facilities, disabled access and toilets. Disabled parking is on site at the front of the building 

Directions:

From Portsmouth/A3M From the A27, turn left into Castle Street (brown sign to Portchester Castle) at the first roundabout when entering Portchester.  Take the first right into Assheton Court and you will see the Parish Hall immediately on your left. Continue past the hall and the free car park entrance is just past the hall on the left. Further parking is  round the left bend on the right. 

From Fareham  From the A27, take the right hand exit into Castle Street at the last roundabout (the opposite side of the station signpost). Take the first right into Assheton Court and you will see the Parish Hall immediately on your left. The free car park entrance is just past the hall on the left. Further parking is round the left bend on the right. 

If driving to the hall, please use Google Maps or Apple Maps for much more detail than could be included above.

Public transport The train station is in the Hillway, off the main roundabout, around 8  minutes walk to the Parish Hall. The bus stop is near the precinct, around 3 minutes walk away.

The London support group is a welcoming group for those affected by pituitary conditions in the London area.

We meet in different teaching hospitals across London when a Consultant Endocrinologist gives a talk on a Pituitary subject, followed by a Q&A session. We welcome anyone impacted by a pituitary condition, including friends and families, especially those who are newly diagnosed or who haven’t attended a support group session before.

Contact us using the form below if you would like to find out more or join a meeting. Click on the meeting below to find out more information about the specific events.

Location

LAPPs meet in different hospitals across London.

The Guildford and Surrey Support Group provides much needed support and information for people through meetings. Everyone is welcome to attend our meetings including those who are newly diagnosed or people supporting others with a condition.

Tea, coffee and biscuits are available and we also host a fun raffle.

If you would like more information, please get in touch below.

The Salisbury group provides support for anyone affected by a pituitary condition including friends and family members of those with conditions. Anyone is welcome to come along to meetings.

If you would like to find out more about the group or join one of our meetings, fill out the contact form below and we will get in touch. You can find out more about their upcoming events by clicking on the events below.

Location

The Quaker meeting house, 51 Wilton Road, Salisbury, SP2 7EP

Enquire about the group

The Far South West Pituitary Support Group is a friendly and supportive community spread across a vast geographical area – from the Somerset Levels down to Land’s End. 

The group currently has over 200 members, and our meetings rotate between our Hospital Endocrine Centres located in Exeter, Plymouth, Taunton, Torbay, Truro, and Yeovil. 

We aim to annually hold two meetings (Spring and Autumn) in each Centre, ensuring that our members across our region have direct access to local support close to their home and can access ALL our meetings across the region.

Our meetings are open to anyone affected by pituitary conditions. Partners, family members, and carers are warmly welcomed too, as we recognise the importance of shared understanding and support throughout the medical journey.

At ALL our meetings, you can:

• Meet others living with pituitary conditions.
• Speak directly with medical professionals.
• Share experiences and gain practical support.
• Learn how to advocate for yourself and achieve the best possible outcomes for your individual healthcare journey.

Meetings are generally held in the late afternoon and last for a couple of hours in a relaxed and welcoming environment.

We hope you will join us and become part of our supportive community. 

To find out more about the group or to attend a meeting, please contact us using the link below.

We look forward to welcoming you.

The Far South West Local Support Group Team covering Exeter, Plymouth, Taunton, Torbay, Truro and Yeovil.

The Oxford Patient Support Group is for the support of anyone affected by a pituitary condition, including people who are newly diagnosed. Many in our group attend OCDEM at the Churchill Hospital in Oxford for their pituitary treatment.

We currently have around 60 people in our group. We aim to have around four meetings a year, and these are held virtually using Zoom. Sometimes we have a guest medical speaker who can give insight into their work.

We also aim to have social meetings during the year, where we can meet in person, get to know each other a bit more, and of course talk about the challenges of living with a pituitary condition. If you would like to join this friendly and helpful group, or find out what is going on and when the next meetings are, please fill out the contact form below and we will be in touch.

The Birmingham and West Midlands Support Group provides much needed support and information for people through meetings. We usually hold 3 or 4 meetings a year, at the University of Birmingham School in Harborne.

Everyone is welcome at meetings and you will find that they are a friendly and informal atmosphere. We try to have an expert speaker talking about a specific subject related to endocrinology or pituitary conditions.

We also have tea, coffee & biscuits, along with time for an informal chat. David and Nigel co-ordinate the group and can be contacted via email below.

Location

University of Birmingham School, 12 Weoley Park Rd, Birmingham B29 6QU