The North Wiltshire group was launched in December 2025 by Helen!

Everyone is welcome at meetings and you will find that they are a friendly and informal atmosphere. We try to host different activities over the year, including Q&A’s with expert speakers, informal meetups for people living with pituitary conditions, and events for patients, their families and support network.

For group information please get in touch with Helen using the contact form below.

Hi there!  I’m Matt and welcome to the page for the Pituitary Foundation’s LGBTQIA+ group!  I’m 26, identify as trans (AMAB) and have had a diagnosed pituitary condition from age 17 - Panhypopituitarism - caused by two germinoma brain tumours located on my pituitary and pineal glands.  Due to all this and my increased risk of regrowth if starting any affirming hormone treatment I have decided to stay on testosterone injections for my physical health despite its impact on my identity.

For the group I try to keep every meet-up very relaxed, open and informal, aiming to create a group where you feel supported and surrounded by people who understand what you’re going through!

Meet-ups vary, sometimes we have a speaker addressing LGBTQIA+ specific issues, topic focussed chats, games, special seasonal meet-up events, and more!  If you’d like a bit more information, join our next meet-up or have a suggestion for a meet-up feel free to email me at: [email protected]

Everyone who identifies under the LGBTQIA+ banner with a pituitary condition is welcome to join.

We also have a WhatsApp group which you can join, I’ll make a bit of time at the end of each meet-up where I can add you so if you’d like to join just attend one of the meet-ups and I can get you added to the group!

I’m not LGBTQIA+ but am an ally, can I join the meet-ups?

For any allies who’d like to join meet-ups I appreciate your support and while these meet-ups will remain exclusive to LGBTQIA+ people I am hoping to host a one-off larger meetup open to allies as well in the future!

I am LGBTQIA+ and strongly suspect I have a pituitary condition but have not been diagnosed with one, can I join the group?

This group is currently only open to LGBTQIA+ people with a confirmed pituitary condition.

The Edinburgh Support Group provides support and information for people through meetings. We usually hold 3 or 4 meetings a year. These will be both online and in-person.

The group is open to all who are willing to travel, even if you are outside the Edinburgh area.

Everyone is welcome at meetings and you will find that they are a friendly and informal atmosphere. We try to host different activities over the year, including Q&A's with expert speakers, informal meetups for people living with pituitary conditions, and events for patients, their families and support network.

If you have any questions or would like to be contacted about the next meeting, please fill out the contact form below.

The Leicester Support Group provides much needed support and information for people through meetings. We usually hold 3 or 4 meetings a year.

Everyone is welcome at meetings and you will find that they are a friendly and informal atmosphere. We try to host different activities over the year, including Q&A's with expert speakers, informal meetups for people living with pituitary conditions, and events for patients, their families and support network.

If you have any questions or would like to be contacted about the next meeting, please fill out the contact form below.

The Sussex Support Group provides support to everyone in the pituitary community in the Sussex area. Meetings are a chance to support each other, and learn more about pituitary conditions with people who understand. Anyone affected by a pituitary condition is welcome at meetings including family and friends of those with conditions.

The group will be meeting both informally, to get to know other people in the pituitary community, and also with expert medical speakers. The group will be meeting every three months.

The group meets four times per year, and moved between different locations across the county per meeting.

If you have any questions or would like to be contacted about the next meeting, please fill out the contact form below.

This is our online support group for everyone affected by acromegaly. We offer a place where you can raise your concerns, ask questions and receive support from people who truly understand what you’re going through. 

In addition to the support of our community members, we have medical professionals with experience in managing acromegaly joining us on a frequent basis. They will be there to answer your medical questions and provide you with guidance and advice.

Next to meeting online, we're trying to host yearly in-person events where we can connect with fellow people with acromegaly and medical professionals face-to-face.

Hi! My name’s Dan Jeffries and I am the volunteer leading this support group.

I was diagnosed with Acromegaly in 2007 after a chance encounter with medical students.

A few years on and I am in remission and enjoying life. I write music and like to be creative. I am also a Volunteer Ambassador for The Pituitary Foundation, a trustee of Medics 4 Rare Diseases, organise a yearly ‘meetup’ for acromegalics, and now really excited to be producing AcroTales, a podcast about acromegaly. In 2015 I published my memoir, Me, Myself & Eye.

Our online meetings take place online every 3-4 months. Please fill out the contact form to find out more about the group and our next meeting.

We look forward to seeing you!

This is our support group for everyone affected by pituitary conditions from 18 years up to 30. We offer a place where you can raise your concerns, ask questions and receive support from people who truly understand what you’re going through. 

Be it questions about how to navigate school, university or your first job, this is a space to ask and discuss them. We will host frequent online Q&A's with medical professionals as well as online meetups. Additionally, we will try to meet in person at least once a year.

Hello everyone! My name is Aleha and I am 20 years old. I’ve had Panhypopituitarism from birth but was diagnosed at 3 years old. The world of medicines and hospitals is all I have ever known and that has come with many challenges. At any age, a chronic illness is a difficult concept to come to terms with. When I was 17, I went to a Pituitary Foundation event but was the youngest there. Fortunately, that’s where I met Kim, who works for The Pituitary Foundation and was interested in starting a support group for the youth which was always a dream of mine. I hope this group shows children and young adults that they are not alone. There is someone out there who understands the feeling of isolation and frustration when living with a pituitary condition at a young age. Despite how it feels, your illness isn’t your weakness, but your drive to do something great with what you’ve been given.

If you would like to attend our next meeting or get in touch, please fill out the contact form below. You can also let us know any questions or concerns.

Unfortunately, this group cannot accommodate for under 18s due to policy reasons.

We kindly ask parents/carers of children with pituitary conditions who are younger than 18 not to attend these meetings to ensure this is a space for young people in the mentioned age range only. We are currently looking into ways how to create a supported space for children under 18 years old and their carers/parents and will keep you updated on that.

We look forward to hearing from you!

The Nottingham Support Group provides much needed support and information for people through meetings. We usually hold 3 or 4 meetings a year.

Everyone is welcome at meetings and you will find that they are a friendly and informal atmosphere. We try to host different activities over the year, including Q&A's with expert speakers, informal meetups for people living with pituitary conditions, and events for patients, their families and support network.

If you have any questions or would like to be contacted about the next meeting, please fill out the contact form below.

This is our online support group for everyone affected by Cushing's. We offer a place where you can raise your concerns, ask questions and receive support from people who truly understand what you’re going through. 

In addition to the support of our community members, we have medical professionals with experience in managing Cushing's joining us on a frequent basis. They will be there to answer your medical questions and provide you with guidance and advice.

Our meetings take place online every 3-4 months. Please fill out the contact form to find out more about the group and our next meeting. Follow this link if you would like to join the Facebook group.

We look forward to seeing you!

The Coventry Support Group provides much needed support and information for people through meetings. We usually hold 3 or 4 meetings a year.

Everyone is welcome at meetings and you will find that they are a friendly and informal atmosphere. We try to host different activities over the year, including Q&A's with expert speakers, informal meetups for people living with pituitary conditions, and events for patients, their families and support network.

You can also find us on instagram @coventrysupportgroup.

If you have any questions or would like to be contacted about the next meeting, please fill out the contact form below.