What is this survey?
This short survey wants to understand what symptoms people with Cushing’s first noticed, before they were diagnosed. The survey asks about early symptoms, how they affected your daily life and your initial experiences with doctors.
The aim of this survey is to use insights about early symptoms to help people with Cushing’s get diagnosed earlier.
Who is running this survey?
This survey is being run by OpalMedica, a healthcare consultancy working to improve how rare conditions like Cushing’s are recognised and diagnosed. The team is currently focused on understanding the early signs of Cushing’s and the challenges people face in getting a diagnosis. By listening to real, lived experiences and working closely with clinicians and advocacy groups, OpalMedica hopes to support efforts that lead to earlier answers and better care for those affected.
This survey should only take a few minutes to complete and is completely anonymous.