We have received feedback that some people are only being provided with prescriptions for 28 day / 1 month supplies of the following vital medications:
- Hydrocortisone (in its various forms)
- Desmopressin
- Levothyroxine
- Prednisolone
- Testosterone
- Oestrogen
We believe it is important that people receive prescriptions for longer than this (ideally 3 months or more). This helps prevent you from running out of vital medications and avoids further inconvenience with the regularity of requests.
We would like to understand how many people are affected by this issue. Therefore, we are asking our community to fill out this survey to provide information about what length of prescription you currently receive.
This survey should take around 2 minutes to complete and is anonymous (unless you choose to provide contact details).
Please note, if you receive prescriptions for more than 1 of the vital medications listed above and these prescriptions are for different lengths (e.g. a 1-month supply of hydrocortisone and a 3-month supply of testosterone), please answer the survey in relation to the shortest prescription you receive.
To better understand this issue, we are collaborating with Addison’s Disease Self-Help Group, who are also carrying out a similar survey. Please only answer one of these surveys.
We’d love to hear from you if:
- You are over 18 and
- You live in the UK (so are users of the NHS) and
- You have a diagnosis of a pituitary condition that requires management with one (or more) of the medications listed above