This is our support group for everyone affected by pituitary conditions from 18 years up to 30. We offer a place where you can raise your concerns, ask questions and receive support from people who truly understand what you’re going through. 

Be it questions about how to navigate school, university or your first job, this is a space to ask and discuss them. We will host frequent online Q&A’s with medical professionals as well as online meetups. Additionally, we will try to meet in person at least once a year. This group is led by Aleha and Hannah who span an age range from 18 to 27.

Hello everyone! My name is Aleha and I am 18 years old. I’ve had Panhypopituitarism from birth but was diagnosed at 3 years old. The world of medicines and hospitals is all I have ever known and that has come with many challenges. At any age, a chronic illness is a difficult concept to come to terms with. When I was 17, I went to a Pituitary Foundation event but was the youngest there. Fortunately, that’s where I met Kim, who works for The Pituitary Foundation and was interested in starting a support group for the youth which was always a dream of mine. I hope this group shows children and young adults that they are not alone. There is someone out there who understands the feeling of isolation and frustration when living with a pituitary condition at a young age. Despite how it feels, your illness isn’t your weakness, but your drive to do something great with what you’ve been given.

Hey everyone, my name is Hannah. In 2019, I was diagnosed with a pituitary adenoma after over a year of being misdiagnosed. I was in my first year of work, post-uni, when I had my operation which was tough and it took me a long time to recover. In 2020 I was diagnosed with Hypopituitarism as a result of the operation. I have experienced PTSD and have health anxiety as a result of being misdiagnosed for so long and due to losing some vision in one of my eyes. I would love this young people’s support group to be a forum to discuss living with a pituitary condition whilst working/being at uni/enjoying everyday life. I now work in international energy and frequently travel for work which I love! I look forward to making this support group a success!

If you would like to attend our next meeting or get in touch, please fill out the contact form below. You can also let us know any questions or concerns.

Unfortunately, this group cannot accommodate for under 18s due to policy reasons.

We kindly ask parents/carers of children with pituitary conditions who are younger than 18 not to attend these meetings to ensure this is a space for young people in the mentioned age range only. We are currently looking into ways how to create a supported space for children under 18 years old and their carers/parents and will keep you updated on that.

We look forward to hearing from you!


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