This is our online support group for everyone affected by acromegaly. We offer a place where you can raise your concerns, ask questions and receive support from people who truly understand what you’re going through.
In addition to the support of our community members, we have medical professionals with experience in managing acromegaly joining us on a frequent basis. They will be there to answer your medical questions and provide you with guidance and advice.
Next to meeting online, we’re trying to host yearly in-person events where we can connect with fellow people with acromegaly and medical professionals face-to-face.
Hi! My name’s Dan Jeffries and I am the volunteer leading this support group.
I was diagnosed with Acromegaly in 2007 after a chance encounter with medical students.
A few years on and I am in remission and enjoying life. I write music and like to be creative. I am also a Volunteer Ambassador for The Pituitary Foundation, a trustee of Medics 4 Rare Diseases, organise a yearly ‘meetup’ for acromegalics, and now really excited to be producing AcroTales, a podcast about acromegaly. In 2015 I published my memoir, Me, Myself & Eye.
Our online meetings take place online every 3-4 months. Please fill out the contact form to find out more about the group and our next meeting.
We look forward to seeing you!
No upcoming events.