The University of Birmingham want to speak to people with Kallmann Syndrome to get their lived experience. They run an educational initiative for medical students called ‘Simulation via Instant Messaging – Birmingham Advance’ (SIMBA). The aim of SIMBA is to create simulation learning based on (anonymised) real-life patient case studies to improve medical students and healthcare professionals’ confidence and knowledge.

The SIMBA team have also become increasingly interested in including lived experience perspectives within training, through inviting patient representatives to also feedback and discuss their thoughts on how cases were handled. Specifically, what they as patient representatives feel was handled well, what they feel could have been handled better and how representative the case felt generally. This is also important so that future and current healthcare professionals can gain a better understanding of patient needs.

This September (27th & 28th) the team are planning to run SIMBA ‘REPRO’ edition, which will have a focus on reproductive endocrine conditions. They would like to invite 5-7 people with lived experience of having Kallmann Syndrome to take part in the event.

This would take the form of:

  1. A 30-minute online Zoom group discussion exploring an Kallmann Syndrome-related case study with members of our team
  2. The opportunity to join in the SIMBA REPRO session itself where the cases will be discussed by expert clinicians and where the key feedback from lived experience attendees will also be shared.

You would not need to attend the entire SIMBA REPRO session (as they are full day events), but instead could just join the section of the day related to the Kallmann Syndrome case study, which would be under an hour. This would give you the opportunity to learn more about how decision-making around a case is made and to ask questions. We can confirm closer to the time the exact date/time on the 27th or 28th. We would aim to run the 30-minute discussion a few days before the SIMBA REPRO session itself. Only take a maximum of 7 people with Kallmann Syndrome, as we have limited spaces.

If you are available on these dates and would like to get involved please contact Caroline Gillet: [email protected]