Working with your clinical team
A child’s clinical team will educate the child’s caregiver about their medication, but on a day to day basis the caregiver is living and coping with this and has great ongoing responsibilities for the child’s condition.
If a child has to have hydrocortisone replacements, you need to give them their daily doses and be alert for ‘adrenal crises’, which can be life threatening.
We have an informative leaflet called Hydrocortisone Advice for Parents which would help support their day to day decisions and care of their child.
Organisations who can provide additional support
Child Growth Foundation – Support, research funding, public education and growth monitoring. Online discussion forums.
Young Minds Trust – Services to protect young people’s mental health including a helpline, patient information, campaigning & many publications.