Below are the people who are taking part in fundraising for our 30th year! Find out about their achievements, and get inspired to take on your own fundraising. If you would like to be featured on this page, please scroll to the bottom of this page where you can find out more.

Robbie

Robbie raised funds by doing a sponsored head shave. He raised over £3,000 in honour for his daughter Piper, who was diagnosed with Congenital Panhypopituitarism at 7 days old.

Jay

Jay will be swimming at least 30 lengths every day during February.

Debbie

Debbie is holding an ABBA tribute charity night to celebrate our 30th anniversary.

Charlotte

Charlotte is giving up alcohol for 40 days.

Helen

Helen is taking on the couch-to-5k challenge with the goal of running for 30 minutes without stopping.

Matt

Matt will be running his first half-marathon since his Cushing’s diagnosis in 2020.

Ruth

Ruth is training to run 30k in May. This year marks her 5 year anniversary since being diagnosed with idiopathic AVP-D.

Sam

Sam is asking for donations on JustGiving in memory of Angela Fowler.

Claire

Claire will be running the Edinburgh Marathon!

Nicola

Nicola raised £230 by doing a sponsored walk this past March. She set a goal of 30,000 steps and ended up walking 88,750 steps! She also raised funds by knitting baby outfits.

Annabel

Annabel completed a 30 day challenge where she set out to raise awareness for pituitary conditions. She posted her childhood diary entries from 1984 on her online blog. Her posts cover entries from before and after her pituitary operation 40 years ago!

The following people have kindly donated £30 or more as part of our 30th anniversary appeal: Anna Crown, Deborah Cooper, Alison Milne, Sue Jackson, Phil Rouse, Stafford Lightman, Shirley Davis, Peter Terry, Pamela Shrimpton, Colette Harris, Clive Lingard, Javir Sigh, Vivienne Cox, Jeanette Curran, Ruth Carter, A. J. Wootton, Sharon Smith, Howard Sutton, Andrew Dogherty, Peter Cork, Joanne Megginson, Anne Tombs, Frances Avery, Patricia Bolton, Sheila Hutchinson, Paul Harold Burgan, Michèle Levy, Nich Lake, Tim Greenhill, Michael Crisp, Emma Reilly, Caleb Parker, Simon Hancox, Tony Gamble, Dennis Moxlow, Neale Salt, Ian Warne, Nicholas Jardine, Margaret Matthews, Anne Henderson, David Holmes, Robert Gore, Nicola Davies.


Your anniversaries:

Denise – “This year I’ll be celebrating 50 years since my last radiotherapy.  I understand my  life expectation was just 18 months. Currently I’ve had 47 years…”

Jordan – “I was diagnosed with a pituitary tumour when I was 11 at the end of July 2002; 3 days before the end of year 5 when i was transferred to great Ormond street for treatment. A particular song that I remember singing and dancing to with the nurses was ‘Any One Of Us’ by Gareth Gates. It was just after he came second on pop idol and i was in love with him. This song means so much because it reminds me of being in my bed with my walkman on, blasting that tune on repeat and the nurses dancing and singing with me, made me smile and laugh and distracted me from what was actually going on. I am 31 now and am well in the routine of living life with a pituitary condition but this memory still sits in my heart like it was yesterday.”

James – “I was told I had a pituitary adenoma on 15 December 2016.  After a rollercoaster of emotions, my wife and I went out for a comforting fish and chips dinner at one of our favourite eateries by the harbourside at Eyemouth in the Scottish Borders.  We parked on the quay facing the harbour.  Upon finishing our meal, we came out to find the tide had started to come in and the boats were now sitting higher – this revealed ‘Fear Not’ was the vessel directly in front of our car.  I took this as a reassuring sign…”

Annabel – “My pituitary anniversary is 40 years since I had my operation. Easter 1984 the tumour was removed, just before my o-level exams, so 10 years before the Foundation existed! I became a member early on, although didn’t realise at the time how new the charity was. Thanks for all your help over the years.”

Paul – “My diagnosis for panhypopituitarism and diabetes insipidus was September 1999. Favourite songs: Morning has broken by Cat Steven (1971) and New York City Boys by Pet Shop Boys (1999).”

Mark – “Music is so personal to me and I can’t remember much with my memory troubles but what song was playing at a particular time really sticks with me. My diagnosis was 3 August 1995 and my operation was 9 August 1995. The song that was playing when I was in hospital that sticks is I’ll Be There for You (theme from Friends) by The Rembrandts. I know the lines “When it hasn’t been your day, your week, your month, or even your year” and the “I’ll be there for you” lines meant a lot with my mother and brother watching over me as much as permissible in Great Ormond Street at the time! And also with The Pituitary Foundation there for me since I was introduced to you in early 1996 by MedicAlert.”

Tim – “My pituitary anniversary is 26th March 2000. The music that helped me during this time was Mozart’s ‘Adagio’. I found it very helpful and calming during that difficult time in my life.”

Lisa – “Tumour removed on 15th July 1985. There must be an angel by Eurythmics was my memorable song which I was singing going up in the lift to my op! Live Aid had been on TV the weekend before but I was too nervous to watch it or think about anything! This date reminds me how far I’ve come, how much I’ve learnt and how much I’ve been through medically.”


If you would like to feature on this page, then please complete the form below telling us about your fundraising efforts. If you meet our criteria, we will share your name and picture. Alternatively, you can email [email protected].

Feature on this page

Name(Required)
Tell us about what you are doing to fundraise, you can also share your JustGiving page.
This can be a photo of you, or an image that represents you.
Max. file size: 25 MB.