Patient Care Survey 2021: Results

A total of 982 survey forms were completed, with 700 providing free text comment. Of those leaving comments, a number of areas of concern for the pituitary patient group. 98% had received NHS endocrine care in the past 3 years.


The startling results highlight some significant issues in the systems that patients navigate.  Amongst examples of good, there are many examples where care has fallen below a standard that should be expected, with potentially life-threatening consequences.

There is the need for immediate remedial action and improved communication. The good news is that we believe this to be achievable in the short term, and we would hope this to extend in the longer term.

There is a clear urgency to raise awareness and increase education around pituitary conditions in GP, emergency and non-endocrine settings.  Within endocrinology, patient experiences are patchy. It is interesting that this is often due to communication – simple, and arguably easy to remedy.

The survey sought responses for the past three years, pre-dating the pandemic.  The impact of Covid on patients as well as on NHS staff is undeniable.  However, whilst any survey will enable a bias towards negative experiences, the themes raised in this survey are amplified rather than created by the Covid crisis. 

Three Steps

The report summarises the findings of the survey, and gives us a clear call to action with three steps we can all take:

  1. Increase Awareness & education of pituitary conditions
  2. Increase awareness of importance of communication
  3. Signpost Charities’ Support  

Professor of Endocrinology and Consultant Endocrinologist John Newell-Price, Chair of The Pituitary Foundation medical committee, underlines this, saying:

“This is an urgent call to arms for all of us working in Endocrinology. The Pituitary Foundation, in conversation with NHS health care staff, has outlined three simple steps which we can all take to health-check our services to patients and improve communication.”

We believe that patient care can be dramatically improved through increased awareness, education and communication. All healthcare settings are encouraged to consider how they could health-check their settings against these steps.

We will work with peers and partners to achieve positive outcomes for patients. In particular, we are collaborating with the Society for Endocrinology’s Future of Endocrinology working group, with whom we share common aims and outcomes.

Read the full report.