It is estimated that there are between 50,000 and 70,000 pituitary patients in the United Kingdom.  To meet the need for information and support, in 1994, The Pituitary Foundation was launched, with charitable status following in September 1996.  The Foundation is now a national support, information and advocacy organisation for pituitary patients, their families, friends and carers.  The Foundation operates throughout the UK and Republic of Ireland.

The Pituitary Foundation’s Core Aims are to:

  • Act as a source of information on pituitary conditions and treatment as well as lifestyle and social issues faced by pituitary patients and their families.
  • Provide support for patients and their families and carers.
  • Increase public awareness of pituitary disorders, which, because of their rarity, can be bewildering.
  • Work to understand and represent the experiences and views of pituitary patients in order to improve services and policies to meet their needs.

 The Pituitary Foundation’s Objectives are to:

  • Continue to be known as a supportive and caring organisation.
  • Continue to provide a quality service.
  • Raise awareness of The Foundation and pituitary disease within both the medical profession and general public.
  • Make our Support Services more accessible.
  • Develop a full set of up-to-date leaflets, fact sheets, website and other tools to support the patient through their pituitary journey.
  • Encourage cohesion of local support groups, trustees and staff, and draw the wider membership closer.
  • Build a volunteer programme that offers skills training, guidance, appreciation and recognition.
  • Develop the capacity of fundraising to establish financial stability, which ensures continued provision of core services and enables The Foundation to be driven by members' needs.
  • Further strengthen relationships between The Foundation and the endocrine community of consultants, nurses and members of multi-disciplinary teams.
  • Create partnerships with other charitable organisations to streamline and augment services and refer appropriately.
  • Maintain a highly professional administrative and organisational structure including appropriate governance, financial practice, donor recruitment and appreciation and human resources policy.

The Pituitary Foundation is currently funded entirely through, membership fees, voluntary donations, support from the pharmaceutical industry and grants from grant-making trusts.

Last Updated ( Friday, 18 May 2007 )