Factsheet 16 - Resources: Information and Support

FOR PATIENTS
Publications produced by The Pituitary Foundation, available both as printed matter and via our website www.pituitary.org.uk

PATIENT INFORMATION BOOKLETS

• The Pituitary gland & Its Hormones
• Acromegaly
• Cushing’s
• Diabetes Insipidus
• Prolactinoma
• Male Hormones & Infertility Issues
• Pituitary Surgery
• Pituitary Radiotherapy
• Psychological Issues in Pituitary Disease (Series)
• Employment
• Weight Control & Nutrition
• Hydrocortisone Advice for Patients
• Hydrocortisone Advice for Parents

PROCEEDINGS OF SEVERAL PITUITARY FOUNDATION CONFERENCES
These proceedings include many aspects of pituitary disease such as articles on Growth hormone, new aspects of surgery, visual problems and reports of workshops on acromegaly, Cushing’s, diabetes insipidus, hypopituitarism, prolactinoma, complementary medicine, psychological problems, self image and patient-consultant communication.

PITUITARY LIFE, THE MAGAZINE OF THE PITUITARY FOUNDATION
These contain useful articles on all aspect of pituitary disease written by both medical specialists and patients. Examples include information on taking steroids, experiences of Testosterone therapy, etc.

FOR GPS

• Endotext.org ‘Your Endocrine Source’ www.endotext.org (www.endotext.org/neuroendo/index.htm)
• The Pituitary Foundation Website www.pituitary.org.uk
• Endocrinology (1997) Levy A & Lightman SL New York: Oxford University Press
• Treating Acromegaly. (1994) Wass JAH (Ed) Bristol, UK: Society for Endocrinology
• The Epidemiology, Pathogenesis and Management of Pituitary Tumours (1998) Webb SM
  (Ed) Bristol, UK: BioScientifica
• Emotional aspects of pituitary disease (1998) Weitzner MA, Sonono N & Knutzen R (Eds).
  Psychotherapy and Psychosomatics 67
• Endocrinology (1997) Levy A & Lightman SL. New York: Oxford University Press
• Clinical Endocrinology (1998) Grossman AB Oxford: Blackwell Science
• Treating Acromegaly (1994) Wass JAH (Ed) Bristol, UK: Society for Endocrinology

ORGANISATIONS
Please note: this information is correct at time of publication (Summer 2011).

• Association for Multiple Endocrine Neoplasia www.amend.org.uk
• British Thyroid Foundation PO Box 97, Clifford, Wetherby, West Yorkshire LS23 6XD Tel. 01423 709 707 www.btf-thyroid.org
• Changing Faces The Squire Centre, 33-37 University Street, London WC1E 6JW
  Tel. 0845 450 0275 www.changingfaces.org.uk
• Daisy Network (for premature ovarian failure in young women)
  PO Box 183, Rossendale, BB4 6WZ www.daisynetwork.org.uk
• Infertility Network UK (Formerly ISSUE & CHILD)
  Charter House, 43 St. Leonards Road, Bexhill-on-Sea, East Sussex TN40 1JA
  Tel. 08701 188 088 www.infertilitynetworkuk.com
• Kallmann’s Syndrome www.hypohh.net
  Klinefelter’s Organisation 234 Turton Road, Bolton, BL2 3EE www.klinefelter.org.uk
• MedicAlert 1 Bridge Wharf, 156 Caledonian Road, London N1 9UU
  Tel. 0800 581 420 www.medicalert.org.uk
• Medi-Tag 37 Northampton Street, Hockley, Birmingham B18 6DU Tel: 0121 200 1616  Email: info@medi-tag.co.uk , Web: www.medi-tag.co.uk 
• National Osteoporosis Society. Camerton, Bath BA2 0PJ Help Line 0845 450 0230  General 01761 471771 www.nos.org.uk
• Partially Sighted Society Queens Road, Doncaster DN1 2NX
  Tel. 01302 323132/01302 368998 Email:  info@partsight.org.uk website via www.eyeconditions.org.uk
• Royal National Institute of the Blind (RNIB) 105 Judd Street, London WC1H 9NE
  Tel. (Helpline) 0845 766 9999 www.rnib.org.uk
• The Child Growth Foundation 2 Mayfield Avenue, Chiswick, London W4 1PW
  Tel. 0208 995 0257 www.childgrowthfoundation.org
• The Pituitary Network Association P.O. Box 1958, Thousand Oaks, CA 91358 USA   Tel. 001 (805) 499-9973 Fax. 001 (805) 480-0633 www.pituitary.org

©2011 Version 3 (To be reviewed by 2013)