|
The Pituitary Foundation's Forum is an online community. The forum is a just another resource for you to connect and share with other patients and family members on the pituitary journey. You can do it anytime, day or night - all you need is a computer and internet access! Our Forum has dedicated sections for the different pituitary conditions as well as lifestyle topics. These forums allow you to talk with other people who can offer support, information and advice from their own pituitary experiences. Similarly, perhaps you can help others who may find themselves wondering “what next?”, “how to?”, “where do I go now?”, “does anyone understand?” The Forum is moderated by a number of volunteers in our community and it is a safe environment in which to share experiences. The Pituitary Foundation's online Forum is open to subscribed members of The Foundation only. To use the Forum, you’ll need to contact us to receive your username and password. Please do this only via email to volunteer@pituitary.org.uk. Our office volunteers will send you a reply email with all you need to know to log in and get to chatting. (Just a note that our office volunteers are as busy as our staff, so it may take 24-72 hours for a return mail and no emails will be answered on the weekends. Please bear with us, we’ll get you started as soon as we can.) If you are not already a member of The Foundation, simply click on the Become a Member icon below:
Please note that the Online Forum is a place to share personal experiences and practical solutions. Each case is different, so information provided by others may not necessarily be right for you. Advice on medical issues or treatment options (including complementary therapies and vitamin or nutritional supplements) should always be explored with your GP or consultant before it is put into practice.
Copy of the Registration Agreement for On-line Forum Purpose
a. The purpose of The Pituitary Foundation on-line forum is to provide a safe forum for people affected by pituitary conditions to share experiences and help each other cope with the challenges of living with pituitary disease.
b. The Pituitary Foundation does not, nor could it be expected to, pre-check the content posted via the discussion system and, as such, does not guarantee and makes no representations as to the accuracy, integrity, timeliness or quality of such content.
c. The discussion system, and website in general, is not a substitute nor is purported to be professional advice. You should consult your doctor, or other relevant professional, before making any decisions that could affect you or others. Conduct of users
a. Participation in, and use of, all areas of the site is at the user’s own risk.
b. All views and information, whether publicly posted or privately transmitted are individual and not the views, policy or advice of the The Pituitary Foundation. You understand and acknowledge that content is the sole responsibility of the person from which such content originated.
c. Any reference to third party organisations, their product/s or service/s does not imply endorsement by The Pituitary Foundation. The Pituitary Foundation aims to remove such references but has no obligation to do this.
d. The use of the message boards for gathering information for surveys and research studies, or similar, is prohibited unless prior permission has been given by The Pituitary Foundation.
e. In accordance with the Home Office good practice guide for child protection on the internet, users of this system must be 16 or over, or supervised by an adult if younger than 16.
f. You agree not to participate in mischievous or malicious behaviour which causes damage or may cause damage to The Pituitary Foundation or this site or any of the computer systems on which this site resides.
g. By using this site you agree to these terms and conditions. If you do not agree to these terms and conditions The Pituitary Foundation reserves the right to prohibit you from using the site. Postings and messages
a. Content that is posted to The Pituitary Foundation on-line forum or otherwise included in its private messaging systems, including your choice of public name or id, must follow these conditions.
b. Messages must not be obscene, defamatory or libellous, vulgar, sexually orientated, hateful, threatening, or in violation of any laws or good morals and practice. You hereby undertake to indemnify and hold harmless The Pituitary Foundation against all costs and expenses from any such actions by you.
c. Messages containing contact details (web addresses, emails, phone numbers, fax numbers or postal addresses) are not allowed except with the prior written consent of The Pituitary Foundation.
d. Messages must not contain advertisements or references to products or services except with the prior written consent of The Pituitary Foundation.
e. Messages must not be excessively repeated intentionally.
f. Messages must not infringe or violate another party’s rights (including, but not limited to, intellectual property rights, image rights and rights of privacy and publicity).
g. By submitting information to the on-line forum, you grant The Pituitary Foundation a non-exclusive worldwide royalty-free perpetual non-revocable licence to use, distribute, adapt, modify, display, reproduce and transmit such information in any and all media in the manner in whole or in part without any duty to account to you. You also grant The Pituitary Foundation the right to grant licences to users of the Website to view and copy such information for personal use.
h. The Pituitary Foundation may from time to time edit or remove posts that are contrary to these terms and conditions or not constructive to the overall purpose and mission of The Pituitary Foundation or create a distraction to that purpose and mission.
i. You agree not to transmit any chain letters, spam, or junk messages to other users.
j. You must not send unsolicited messages for the purpose of ‘advertising’ a product or service.
k. You agree to respect the privacy and wishes of those users who you have been privately messaging. You must not pass on details to third parties (except The Pituitary Foundation) without permission.
l. By sending or receiving a private message you consent to them being viewed by The Pituitary Foundation where The Pituitary Foundation have been notified of a problem or a breach of these terms and conditions. Moderation and Banning
a. The Pituitary Foundation has the right, but no obligation, to remove, edit, move or close any message or group of messages for any reason.
b. The Pituitary Foundation is not obliged to enter into any correspondence regarding the moderation of content on The Pituitary Foundation website and discussion system.
c. The Pituitary Foundation has the right to modify or delete any or all information relating to a user, including deletion of that user’s account, without prior notice or reason.
d. Any removal or banning of a visitor from anywhere within The Pituitary Foundation website is binding and the decision is final, and no correspondence will be entered into nor will The Pituitary Foundation be obliged to explain such banning.
e. Any banning of a visitor from The Pituitary Foundation website will result in their subscription to The Foundation being rescinded with forfeit of fees. Privacy and Data Protection
a. We do not collect any personal information about you, unless you choose to provide it. We will never share this information with a third party, or advertiser, except where you have given permission.
b. Cookies are used to assist the functionality of the website only, personal data is not collected via cookies.
c. From time to time The Pituitary Foundation may contact you for administration purposes. Notice
a. Where a breach of these terms and conditions occurs The Pituitary Foundation reserves the right to take such action as it sees fit.
b. When you link to other organisations via The Pituitary Foundation website, you then are subject to the rules and privacy laws of that organisations’ site.
c. This agreement shall be governed in accordance with the laws of, and shall be subject to the jurisdiction of the Courts of England and Wales.
d. The terms and conditions of this agreement are subject to change by The Pituitary Foundation at any time, The Pituitary Foundation will aim to make users aware of any significant changes. Any user’s use of this site following changes shall indicate the user’s acceptance of the new agreement. Exclusion of liability
a. The Pituitary Foundation hereby excludes all and any losses, liabilities, claims, damages, expenses or costs arising in connection with:
b. your use or inability to use the Site;
i. any unauthorised access to or alterations of information provided by you;
ii. your use of any third party websites (including without limitation those that may be connected by hyperlink to the Site);
iii. any arrangements entered into with any third party in connection with any information provided by or in connection with the Site;
iv. the inaccuracy, incompleteness or tardiness of any information supplied through the service;
v. any viruses, spyware, cookies that are spread or gathered through the site;
vi. other than, in each case, any liability in respect of death or personal injury. Definitions
a. “this site” refers to all Internet pages in the pituitary.org.uk domain;
b. “The Pituitary Foundation” includes to any person or organisation involved in any part of the design, development, response-handling, marketing, promotion or other similar aspects of this site;
c. “user” refers to any person viewing or interacting with this site, including “you”;
d. “content” refers to any text, photograph or other image presented on this site to users by either The Pituitary Foundation or users.
aaa
|
Someone to talk to