The Pituitary Foundation provides a variety of support services in an attempt to meet the needs not only of our patients but also carers, family members and friends of those affected by pituitary disease.  We understand when a patient is diagnosed, it affects their life and those around them.

You don't have to be a patient to access the following services, we encourage family members and friends to contact us if they need information or support.

These services include:

Information and Support HelpLine
0845 450 0375
Monday - Friday, 9:00 to 5:00

Mission Statement for Information and Support HelpLine

The Pituitary Foundation Information and Support HelpLine provides a confidential and non-judgemental service to pituitary patients, their carer, families and friends. This service delivers appropriate and clear information in a prompt and empathetic manner to enable callers to make informed choices.

Please Note:

• The Information and Support HelpLine service cannot offer medical advice, nor can we become involved in the management of any individual case.
• At busy times there are other calls being taken and an answer phone message will be heard. We unfortunately cannot return calls, but please try again.
• Our telephone system has a number display facility. Caller’s telephone numbers to the HelpLine are displayed on our telephone screens. Your displayed number is not recorded in any means unless you give us permission.
  

Endocrine Nurse Information HelpLine
0845 450 0377
Monday Evenings:  5:30 to 9:30
Thursday Mornings:  9:00 to 1:00
Please call only during these times.

Mission Statement for Endocrine Nurse Information HelpLine

The Pituitary Foundation Endocrine Nurse Information HelpLine provides a confidential and non-judgemental service to pituitary patients, their carers, families and friends. This service delivers appropriate and clear information in a prompt and empathetic manner to enable callers to make informed choices. The Endocrine Nurse HelpLine can offer medical information as a base for discussion with your GP or endocrine specialist.

Please Note:

• The Endocrine Nurse HelpLine cannot become involved in the medical or non-medical management of any individual case.
• At busy times there are other calls being taken and an answer phone message will be heard. We unfortunately cannot return calls, but please try again.
• Our telephone system has a number display facility. Caller’s telephone numbers to the Endocrine Nurse HelpLine are displayed on the telephone screen. Your displayed number is not recorded in any means unless you give us permission.
  

Pituitary Foundation Administration Line
0845 450 0376
Monday - Friday, 9:00 to 5:00

A Note on 0845 Numbers  Calls provided by BT will be charged at up to 4 pence per minute at all times. A call set-up fee of 3 pence per call applies to calls from BT residential lines. Mobile and other providers' charges may vary. Our geographical number is 0117 370 1333.

Telephone Buddies Network
We have many trained patient and carer volunteers acting as telephone buddies.

For more information go to our Telephone Buddies page or call us on 0845 450 0375 to be matched with a Telephone Buddy.  You can also email us on helpline@pituitary.org.uk.

Local Support Groups
There are over 20 groups across the UK and Republic of Ireland - go to our Local Support Group pages to find the Group nearest to you.

Carer Support
The Pituitary Foundation has resources and signposting available for Carers including an Online Forum and a Carer's Pack.

For more information click here to go to our Carer Support Section.

Leaflets
We offer thirteen leaflets written by experts to explain the different pituitary conditions and treatments.  These leaflets are available on this website and are also downloadable as PDF files - just click here to go to our Literature Section. 

Our Service

The Pituitary Foundation’s goal is to assist you along your journey with information, support and understanding.  To do this, our service is available to patients, family members, friends and the general population.

We must understand our community’s needs and therefore welcome you to share your stories, your views and your feedback on our services.

However, in common with most charities, we have constraints on our financial and staffing resources, therefore, there has to be limits on the service we offer.  In practical terms this means:

• We cannot provide individualised case management for patients or family members. 
• We cannot intervene in any circumstance faced by individual members of our community with anyone, including employers and medical professionals.  Nor can we assist members with procuring medical appointments or tests and we cannot evaluate cases and provide expert diagnosis or treatment advice.
• We cannot offer funds to individuals.
• We cannot offer services to pituitary patients outside the United Kingdom or the Republic of Ireland.
• We cannot take on personal awareness campaigns within the NHS, other government agencies or amongst the general public.

However there are many things we can do to support our community and hopefully this will grow as and when our funds allow.

We can offer leaflets, information and general advice to assist you in being your own advocate.  We can also signpost you to relevant services who can offer further information and support.

We will endeavour to listen to your suggestions as to our current services and future growth.  If evidence supports the discovery of a need for the majority of the community, we will make every effort to include it in current programmes or build programmes to meet that need (should funding allow).

Our commitment to you is to offer the best possible service throughout your journey.