The Pituitary Foundation provides support to pituitary carers in order that they are better able to offer support and care to the pituitary patient without undue detriment to their own physical, mental and emotional well-being.
The Foundation seeks to support such carers through:
- Provision of our information for carers
Carers Pack (123.50 KB) - Carers Resources which will guide you to other organisations and information available throughout the UK and Republic of Ireland.
- Provision of information about pituitary conditions and related issues.
- The opportunity to speak to trained volunteer Telephone Buddies who are carers.
- Offering referrals to Local Support Groups, many of which have a Carer Representative. Pituitary Carers are most welcome at local support group meetings.
If you are a pituitary carer and would like more information on any of the support services we provide, please email helpline@pituitary.org.uk.
In addition to the information in this section other information for carers can be found in the following sections on our website:
Support groups
The Brain Injury Hub (The Children's Trust)
The Brain Injury Hub is the UK’s new on-line support centre for families of children affected by acquired brain injury.
Offering a wealth of fully-referenced information about childhood acquired brain injury, the website includes practical advice and the facts about a condition that’s often misunderstood.
This new resource has been created by clinicians at The Children’s Trust, the country’s largest residential rehabilitation centre for children with acquired brain injury, and was recently awarded the Information Standard quality mark in recognition of its accurate and impartial information.
Funded entirely by charitable income, the site includes a dedicated section for teachers and education professionals, which brings together information and practical classroom strategies.
Research carried out by The Children’s Trust highlighted the danger of families becoming isolated as they deal with the sudden change in circumstances following a brain injury. With this in mind, the new site includes an open on-line forum to give families the opportunity to share their experiences and offer mutual support.
Parents have already shared their stories in a series of case studies that offer insight into the everyday circumstances of caring for a child with an acquired brain injury.
The Trust’s research also pointed to a need for accessible information, and so the site includes ‘easy-read’ versions of its material written in simple, plain language.
This smartphone-ready site can be accessed by families at any stage of their journey, whether they want a definition of a word they’ve heard at hospital, or they’re looking for practical tips at home. To visit their website, please click here.
Carers UK (formerly CNA)
20-25 Glasshouse Yard, London, EC1A 4JT.
Tel: 020 7490 8818
Fax: 020 7490 8824
Carers Line: 0808 808 7777 (open Mon-Fri, 10am-12pm and 2pm-4pm)
Website: www.carersuk.org
This site contains information on offices in Scotland, Wales and Northern Ireland.
Aims to help anyone whose life is in some way restricted because of the need to take responsibility for the care of a person who is mentally ill, has special needs, is physically disabled or whose health is impaired by sickness or old age.
Contact A Family
209-211 City Road, London, EC1V 1JN
Tel: 020 7608 8700
Fax: 020 7608 8701.
Helpline: 0808 808 3555 (open Mon-Fri, 10am-4pm)
Website: www.cafamily.org.uk
Aims to put parents of children with very rare diseases/disorders in touch with one another where the numbers of patients involved is small and a dedicated support group doesn't exist.
Crossroads Caring for Carers
10 Regent Place, Rugby, Warwickshire, CV21 2PN.
Tel: 0845 450 0350
Fax: 0845 450 6556
Website: www.crossroads.org.uk
Provides practical support to Carers where they need it most: in the home.
Newlife Foundation For Disabled Children
Newlife Centre, Hemlock Way, Cannock, Staffordshire, WS11 7GF
Freephone Nurse Tel No: 0800 902 0095
Website: http://www.newlifecharity.co.uk/
Newlife Foundation cares for all disabled and terminally ill children and is led by professional nurses. Services are manned by qualified and experienced nurses and they also facilitate an Equipment Grants Service.
Since inception this scheme has made equipment grants worth over £5 million, ranging from £50 to £17,000 to buy equipment including mobility, care equipment, communication aids, comfort and therapy equipment and much more. Every grant begins with a call to their Nurse Helpline to ask about eligibility, but essentially equipment is funded relevant to the child’s needs for those aged 18 and under, who have a significant disability and are permanent residents in the UK. No means testing and same-day equipment grants can be made in emergencies. Grant application forms can also be downloaded from the website. All services are free and confidential.
For Nurse Helpline poster please click here: Nurse Poster.pdf
Princess Royal Trust for Carers
147 Minories, London, EC3N 1LB.
Tel: 020 7480 7788
Fax: 020 7481 4729
Website: Princess Royal Trust for Carers
This site contains information on their Glasgow Office, Northern Office and Wales Office.
The Trust supports a national network of Carers Centres where carers who can obtain advice, information and support.
The Carers Association - Ireland
National Office, 'Prior's Orchard', John's Quay, Kilkenny.
Tel: 056 7721 424
National CareLine: Freephone 1800 24 07 24
Website: www.carersireland.com
Other sources of information online
Carers: Patient UKGeneral resources for those caring for someone or for those in need of care. Carers HolidaysThe Carers’ Support Centre provides low-cost, affordable holidays for carers.
Carers 
