Pituitary News, Issue 12 - Summer 1999.

Information about the HYPOHH Open Day at the Birmingham's Children Hospital and the HYPOHH website.

Mark Saunders writes:

HYPOHH was set up in 1994 to provide support and information to those suffering from Kallmann's syndrome, a rare endocrine disorder affecting both men and women which is characterised by a failure to go through puberty naturally, accompanied by a lack of smell (anosmia). HYPOHH has been affiliated to The Pituitary Foundation (the first point of contact for many sufferers) since 1995 and this joint effort has been very successful. Now, five years later, over 200 people have contacted HYPOHH from all over the world, 50 of whom enjoy the full benefits of membership. Our members are patients, their relatives or friends, GPs, endocrinologists and pharmaceutical companies. With the arrival of our website ( www.hypohh.net ), we are receiving e-mails at the rate of one or two a day asking for more information on Kallmann's syndrome and other forms of hypogonadotrophic Hypogonadism. At the last count, HYPOHH.net had had over 700 'hits' since going on line at Christmas.

The most important event in the HYPOHH calendar is the Open Day. The event is open to anyone with a personal or professional interest in Kallmann's syndrome or another form of hypogonadotrophic hypogonadism and you do not have to be a member to come along. The Open Day is an ideal way to meet fellow sufferers and to ask the specialists about any aspect of the condition. Past topics have included HRT, specialised fertility treatment, the risk of Osteoporosis for those with hypogonadism and psychological aspects of delayed or absent puberty. If you would like to come to an Open Day or know more about HYPOHH, please visit the HYPOHH web site.