(24 February 2010)

It has come to our attention that two members of our community have felt it necessary to go to the media regarding decisions made by the Trustees of The Foundation. We are troubled that communications have deteriorated to the point where they felt the need to do this. In any charity, difficult decisions must be made in relation to the allocation of resources and the causes that they are able to champion. This can inevitably lead to some members being disappointed with the decisions that are made.

However, that said, we apologise to Mr. Jon Danzig and Ms. Joanna Lane for any distress we may have inadvertently caused.

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Kallmann Syndrome & Hypogonadotrophic Hypogonadism

Patient Support Group Meeting

Sat 15th May 2010          11:00 am - 5:30 pm

Sheila Sherlock Education Centre, Royal Free Hospital, Hampstead, London, NW3 2QG
Nearest tube station: Belsize Park, Northern Line.

Buffet Lunch provided. Friends & families welcome.

Speakers:

• Prof. Pierre Bouloux, Consultant Endocrinologist, Royal Free Hospital, London
• Dr. Richard Quinton, Consultant Endocrinologist, Victoria Infirmary, Newcastle
• Dr. Paul Chadwick, Clinical Psychologist, UCL, London

This meeting will provide a rare opportunity to meet with leading UK Kallmann Syndrome specialists and to ask questions on currently available treatment options and new advances in the understanding of the condition.

Just as important, if not more so to some patients, is the chance to meet other people with the same condition and to talk to them in an informal environment. People who have attended these meetings in the past have commented on how useful it has been to be able to talk to other people with the saame condition.

There might be a small cost involved but we are currently seeking funding for the meeting.

To download a poster, please click here:  Kallmann syndrome meeting.pdf

For more information contact:
Neil Smith. neilsmith38@hotmail.com www.kallmanns.org

Unfortunately, there has been an error by the Mailing House who distribute the copies of Pituitary Life.  They have failed to print a separate line which shows the Membership Number.

Your Membership Number is the first set of figures on your address label which is shown above your address on the left hand side.

 Any problems then please ring Neil Jefferis on 0117 3701312

Our apologies for this error.

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Do you have experience of Chronic Illness?

I am an undergraduate Sociology student at the University of the West of England currently planning a dissertation examining the experience of people with Chronic Illness. I am looking for research participants working in the Bristol area to take part in a focus group discussion.

If you are over 18 and would like more information about participating in one of these groups, please contact me by e-mail: alice.archer@live.uwe.ac.uk or leave a message on my answer phone: 0797 723 3955.  Please leave your name and a contact telephone number.

Many Thanks!

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We are pleased to announce that we have published two new patient information leaflets in February:

To view the Pituitary Patients Handbook online, please click here

To download a copy of the Handbook, please click here:

(because of the size, the pdf is in two parts)

 Patients Handbook - part 1.pdf (1.4MB)   Patients Handbook - part 2.pdf (1.9MB)

To view the Benefits Fact File online, please click here

To download a copy of the leaflet, please click here:

 Benefits Fact Sheet.pdf (92KB)

The Pituitary Foundation has recently introduced online membership, offering you an easier and faster way to become a member.  Also, to celebrate our 15th Anniversary and to welcome you to The Pituitary Foundation, we are offering, for a limited time, a free gift with membership. 

If you sign up to be a subscribed member, you will receive a 'bag for life' with The Pituitary Foundation's name and logo on the side. Our bag for life comes in a dark green colour, it is made of good quality robust material, both light and portable, offering plenty of space.  You can reuse your bag for life, time and again, and best of all you will be raising awareness of The Pituitary Foundation!

As a member you will also receive other exclusive benefits such as our Pituitary Life newsletter and reduced fees to our regional conferences.  Membership is open to anyone with an interest in pituitary disorders, including patients, their relatives, friends and carers, and medical professionals, including GPs and endocrine specialists.

Click on the ‘Become a Member’ icon at the top of this page to find out more and join today!

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