Thursday, 02 September 2010

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About The Pituitary Foundation
It is estimated that there are between 50,000 and 70,000 pituitary patients in the United Kingdom.  To meet the need for information and support, in 1994, The Pituitary Foundation was launched, with charitable status following in September 1996.  The Foundation is now a national support, information and advocacy organisation for pituitary patients, their families, friends and carers.  The Foundation operates throughout the UK and Republic of Ireland.
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Who's Who at The Pituitary Foundation

Find out more about our Trustees, Staff, Committees, In-Kind Donors, Benefactors and the Trusts that support The Foundation.

Trustees

  • Mr Terry Lloyd, Chairman (Patient, Former Area Co-ordinator Brighton Supprt Group, Former Chairman, Liaison and Resource Group)
  • Dr Stephanie Baldeweg (Endocrinologist, University College London Hospital)
  • Mr Mike Beaven Treasurer (Carer)
  • Mrs Ann Bushen (Patient, Area Co-ordinator Salisbury Support Group)
  • Mr Steve Bushen (Carer, Treasurer Salisbury Support Group)
  • Mrs Carol Holmes (Retired Endocrine Nurse)
  • Mr Mike James (Patient, Treasurer of Bristol Support Group)
  • Dr John Newell-Price (Endocrinologist, University of Sheffield, Northern General Hospital, Chairman of the Medical Committee)
  • Mr Aidan Pennington Honorary Secretary (Patient)
  • Ms Claire Thatcher (PR Professional)
  • Mrs Sue Tumelty (HR Expert)
  • Mrs Jenny West (Patient, Area Co-ordinator Bristol Support Group)
  • Dr Tony Woods (Statistician)

Staff

The Foundation employs the following staff:

Mrs Kit Ashley (Executive Director) - Kit started at The Pituitary Foundation in May 2005.  Years ago, after graduating from Purdue University, she started working at charities including the Rocky Mountain Multiple Sclerosis Center in Denver, Colorado.  She then moved on to the Colorado Neurological Institute (which wasn't difficult as it was two floors above the MS Center!).  With a heavy (but adventurous) heart, Kit left CNI to move to the UK.  Her first role in England was working for a small community centre.  However, Kit found that part-time didn't suit her and she was delighted when she was chosen to join The Pituitary Foundation team as she'd had twelve years of healthcare not-for-profit experience that she could put to use.  On her first weekend after joining the team, she went to AC Training in Birmingham and realised it wasn't a team, it was a community, which made it even better!

Mr Neil Jefferis (Business Controller) - Neil has been at The Foundation, seemingly forever, and is a source of sometimes much needed historical data.  Working four days a week, Neil is responsible for expense payments, invoice payments, payroll, finance input, monthly balancing, membership, facilities management, office management and liaising with our vendors.  Whew!  Over the years we have coaxed out of him that he is a renowned rabbit breeder (in fact, in 2008, he won top of the heap at the rabbit world's rendition of Crufts) and top judge at rabbit shows.  A man of many talents.

Mrs Pat McBride (Patient Support Manager) - Pat began her link with The Foundation back in 1995, as a Volunteer Area Co-ordinator, launching Liverpool Support Group in 1996.  Pat's pituitary condition of pituitary abscess, DI and high Prolactin was diagnosed in 1986 resulting in craniotomy surgery and Pat takes all replacement hormones to this day.  Pat started as a Regional Co-ordinator working with Local Support Groups and on the Early Awareness Project (EAP).  In August 2006, Pat became the Patient Support Manager (and likely, those of you who have been around for awhile will have noticed her making her mark) with responsibilities including the National HelpLine, Pituitary Life editor and our Telephone Buddy service.

Mrs Alison Milne (Endocrine Specialist Nurse) - Alison was born and brought up in the Highlands of Scotland. Alison attended nursing college in Aberdeen and has over twenty years of varied nursing experience, predominantly in Endocrinology.  She currently works as a part-time Endocrine Specialist Nurse in Aberdeen Royal Infirmary. Alison is thoroughly enjoying her role within The Pituitary Foundation and cannot believe it is almost two years since she took up her post and hopes that the pituitary community has benefitted from her extra hours and her experience.  She is looking forward to continuing her ongoing learning and hopes her knowledge will help to support the ever increasing pituitary community.

Ms Menai Owen-Jones (Fundraising Manager) - Menai was born, and brought up, in North Wales and is a fluent Welsh speaker. After graduating from Cardiff University, she began her professional fundraising career working as a community fundraiser for a local hospice in North Wales. Menai has been involved with the voluntary sector for nearly ten years, both as a volunteer, and as an employee. She joined the Foundation with six years’ experience of various fundraising faculties, and has worked for local, regional and national charities including, RNID and Breast Cancer Care. Menai enjoys working in the voluntary sector because it is challenging, varied and rewarding. She is looking forward to contributing towards the future of The Pituitary Foundation.

Ms. Helen Stewart (Service Support Assistant) - Helen joined The Foundation in August 2008 and has experience of being an ongoing pituitary patient with a current diagnosis of a Prolactinoma.  Helen looks after ALL of our volunteers, works with Pat and Alison on patient support projects (such as answering the helpline, answering helpline emails and making certain information requests are dealt with promptly).  Helen is very much looking forward to becoming a part of The Foundation and pituitary community.  She's lucky enough to live right by the River Avon where she enjoy walks and bike rides and she's an avid reader of books and celebrity gossip magazines!!   Helen is also a prolific watcher of all movies (and tells us her boyfriend forces HORROR films on her, but she's getting used to them!). 


Medical Committee

The current members of the Medical Committee are:

  • Dr John Newell-Price (University of Sheffield, Northern General Hospital, Chairman)
  • Dr Stephanie Baldeweg (University College London Hospital)
  • Dr Stephen Ball (Royal Victoria Infirmary, Newcastle)
  • Professor Peter Clayton (Royal Manchester Children's Hospital)
  • Dr Mark Gurnell (Addenbrooke's Hospital, Cambridge)
  • Dr Trevor Howlett (Leicester Royal Infirmary)
  • Mr Mohsen Javadpour (The Walton Centre for Neurology & Neurosurgery)
  • Professor William Ledger (Royal Hallamshire Hospital, Sheffield)
  • Professor Stafford Lightman (University of Bristol, Department of Medicine)
  • Professor John Monson (London Clinic)
  • Dr Jonathan Pinkney (Royal Cornwall Hospital, Truro)
  • Mr Michael Powell (National Hospital for Neurology and Neurosurgery, London)
  • Dr Andrew Toogood (Queen Elizabeth Hospital, Birmingham)
  • Dr Peter Trainer (Christie Hospital, Manchester)
  • Professor John Wass (Churchill Hospital, Oxford)
  • Dr Jonathan Webster (Northern General Hospital, Sheffield)
  • Ms Sue Thorn (Society for Endocrinology)
  • Ms Maggie Carson (Royal Infirmary, Edinburgh)
  • Mrs Kit Ashley (Executive Director)
  • Mrs Pat McBride (Patient Support Manager)
  • Mrs Alison Milne (Endocrine Specialist Nurse)

In-Kind Donors

AJL Print Management is The Pituitary Foundation's print vendor however they provide significant added in-kind products and services in an effort to support The Foundation's expensive but crucial support and information programme

Benefactors

We are grateful for the generous benefactorship of the following companies:   

Patient Education Grants

  • Ferring Pharmaceuticals
  • Merck Serono


The Trusts who Support The Foundation

The Pituitary Foundation would like to thank the following Trusts for their financial support:

  • Society for Endocrinology www.endocrinology.org

  • The Chiron Trust Fund

  • Clothworkers' Foundation

  • Godson Kendal Charitable Trust

  • Lloyds TSB Foundation for England and Wales

  • Sovereign Health Care

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Annual Report and Accounts

June 2009      icon   Annual Report and Accounts 2009.pdf (218.73 KB)   

June 2008      icon Annual Report and Accounts 2008.pdf (239.16 KB)

June 2007      icon Annual Report and Accounts 2007.pdf (284.25 KB)

June 2006      icon AnnualReportandAccountsJune302006 FINAL.pdf (152.47 KB)  

June 2005      icon Available for download as PDF. (148.89 KB)


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